Instead, I thought it would be good to write a letter to the person who has been in my life as a PWD who probably needed the most inspiration and ass smacking over the years. Myself.
It’s me, a much older and well most likely wiser version of you writing to you about life as a person with diabetes in the future. I know you don’t want to hear this, because well I know I didn’t want to hear this but well I am going to pass my wisdom on to you anyway. Maybe you will ignore me, well I know what you will do. You will get pissed off that someone dares to talk to you about have diabetes. Who the hell am I to do that anyway? Yes, you think you know what you are doing. Yes you have survived doing what you have for so many years. I can’t fault that. But just listen and think about things for a few minutes.
First and for most. Yes, a good, low a1c is nice, you can avoid many major complications. Yes what you have been doing shot wise is pretty good as well. But well you were never really taught about that entire difference between your NPH and your R/Humalog insulin. This is very important. Because while yes the twice daily injections of NPH are fine and keep you going at the 20 units a shot, the use of the fast acting insulin was not really explained to you. There is really no need to take the amount of insulin you were taking. The 15 units in the morning and evening while yes balanced out your sugars, have been dropping you low for years, this is why you are going to be hypo unaware. The Humalog insulin is not long term. It moves fast, it drops your sugar. You wonder why you were low so often. It had nothing to do with being cunning or outsmarting your illness. You could have died. In fact in the future you will come close a few times due to your ignorance. It is not really your fault. As far as I can remember I don’t quite remember any of our endo’s from the first at diagnosis to the last one we had before moving to a pump, really explaining this insulin and carbs and shit to us. You are lucky and were lucky. Take a few minutes to educate yourself and ask questions. I promise you can still control your a1c’s. I promise.
That was probably the most important thing. Testing, testing goes hand in hand with everything else. Yes it is a pain in the ass. Especially back in the day when meter’s took a minute to test. The longest minute ever. Yet, some of your issues and problems could have been avoided had you tested more. You might have seen the affects of the insulin regime you were on. Instead, you took a long hiatus from testing because of the waste of time you found it to be. You are given 168 hours in the week to do with as you please. Why not waste a few minutes of that time to keep an eye on things. Than maybe mom won’t keep asking you, “Brian are you ok? You seem grumpy, do you need to eat?” Yes those questions are annoying, but there is a reason to this. Your mom actually is paying attention and cares. Don’t be a fool.
So those are the big things. But I just want to encourage you to take a more active stance on life and take control of being a person with diabetes. There are camps out there to get involved in, something I never did. It will be awesome if you go. You can talk to people and learn stuff. Stuff you might need. People I know who went to camps loved it. Pumps are not a bad thing. They are not for people who can’t “control” their diabetes or did a poor job. You are an idiot for thinking that. Hell where did you even get that idea? Idiot I swear. Well again, you will learn more when you meet people who also are PWD’s. Don’t ignore them. Talk to them. It will help. You are truly not alone in this.
At the same time, don’t change. You will be an awesome guy. Have people laughing at you all the time. you can be a positive force in the hidden world you have chosen to hide in. I promise you, it is worth it. You meet some characters. I know and hell you will become one yourself. I hope this helps. But I promise you, this is just some friendly advice from well you. I know you won’t like to hear this, but I thought you should know some stuff. It will help you from other more embarrassing moments.
Brian at 29 years and 14 years with D.
So I mailed myself this letter, and I got a response. I hate younger Brian.
Dear Old Man Brian,
I just got your message. I wanted to thank you for your concern with how I deal with my diabetes. But you see, I know what I am doing and nothing bad has happened. Why should I fix something that isn’t broke. I don’t really care what you think. You and your “years” of experience. My years have kept me safe and well f-off. Sorry, don’t care. I can handle this on my own.
Brian the smarter and wiser